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Listening @ ACI Alliance
Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants.
ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website.
Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.
We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.
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CI2025 Boston
Call For Abstracts
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Abstract submissions for CI2025 Boston are now being accepted; closing October 2nd. We are looking forward to many cutting-edge abstract proposals from the CI community. Attendees can expect a wide array of cochlear implant and related content. CEU and CME credits will be offered.
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CI2024 Vancouver | That's a Wrap!
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If you weren’t with us at CI2024 Vancouver, you can watch the full ACI Alliance interview with deaf NASCAR driver Kris Martin.
Also, stay tuned for all the highlights (videos and abstracts) from CI2024 as we prepare to post them on our CI2024 Webpage in the coming weeks.
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New Educator SIG Introduced at CI2024 – Let Us Know if You’re Interested!
Continuing on the success of the three existing Special Interest Groups (SIGs) that began meeting at CI2023 Dallas, four SIGs met last month during CI2024. The newest SIG is for educators in the hearing loss field, and the inaugural meeting focused on accessibility in schools and other important topics. If you are interested in details or joining a future meeting of the Educator SIG, please reach out to Alexandria Mestres at asm120@med.miami.edu.
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Check out our video as we interview attendees from CI2024 asking them why ACI Alliance is important to them.
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Hearing Aids or Cochlear Implants: What’s Right for My Child?
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The Hearing Journal 77(7):p 5, July 2024
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Today’s technology makes it possible for babies as young as a few weeks old to get the devices needed for their hearing loss. Your child’s hearing devices are brain access devices. Hearing aids or cochlear implants allow auditory information to travel to the brain, providing access to sound, meaning, and language so that your little one can learn to listen and talk.
Sound is picked up by the ear and flows through the middle ear to the cochlea. The cochlea consists of tiny hair cells that move sound through the inner ear to the hearing nerve and then onto the brain. Hearing loss occurs when those hair cells are missing or not working. In that case, sound needs to be louder—that’s what hearing aids do. If sound can’t be made loud enough or clear enough by hearing aids, then a cochlear implant is needed.
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ACI Alliance Participates in World Hearing Day 2024
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ACI Alliance was proud to participate in World Hearing Day 2024 in March. World Hearing Day is an important day to raise awareness around the world about hearing loss, its impacts, and ways to address it.
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ABCs of IEPs: Guidance for Parents of Kids with Cochlear Implants
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Before back to school starts, review our webinar with expert John Flanders on how to navigate the IEP process.
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We are thrilled to share the release of RALLY CAPS: The MOVIEavailable on VOD everywhere on September 10th! Rally Caps is a heartwarming coming-of-age story that celebrates the strength found in friendship and the ability within disability.
As an early supporter of Rally Caps, ACI Alliance was pleased to provide information on CIs for the Rally Caps website, resources for Rally Caps event, and publicity for the film. Rally Caps will increase awareness of cochlear implants to a broad audience, but more importantly normalizes cochlear implants as a part of a character’s story rather than making a character’s deafness the story.
Starring Academy Award Nominee Judd Hirsch (The Fabelmans), Carson Minniear (Palmer), and Amy Smart (StarGirl), RALLY CAPS is a film written and directed by Lee Cipolla. Based on real events and adapted from the book by Stephen J. Cutler and Jodi Michelle Cutler, this touching story follows Jordy, a young boy who is injured during a Little League baseball tryout. At a summer camp, he forms a deep bond with Lucas, a deaf boy who has recently undergone Cochlear Implant surgery. Together, as a pitcher/catcher duo, they lead their team to victory in the camp championship game.
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Career Center | Find a Job or Post a Job
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Have a position to fill at your organization? Post your job and reach qualified candidates who are seeking employment in a field associated with cochlear implants. To post a job, you must either be an organizational member, or you can purchase a posting.
Explore some of the job opportunities in the field of cochlear implants that are available now and use this system to apply for an open position. This resource is open access.
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ACI Alliance Resources to Print & Share with Patients
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Would you like to have ACI Alliance resources for your patients, families, and others? We are happy to order and ship materials to your clinic, hospital, or organization.
Please email lodato@acialliance.org with your order and/or questions.
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Congratulations to Michael Hoa, MD on recently becoming a full professor at Georgetown University Medical School. In addition to being Chair of the Cochlear Implant Program at MedStar Georgetown, he also works with the Veterans Administration and is a surgeon-scientist in the intramural research program at the National Institute for Deafness and Other Communication Disorders (NIDCD) at the National Institutes of Health (NIH). Dr. Hoa is the Chair of the ACI Alliance Research Committee and is an active State Champion for advocacy.
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Parent Advocates Share Their Stories
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Parents of children with hearing loss are often their strongest advocates. ACI Alliance is happy to collect and share their stories. Please reach out if you want to share your story with us!
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Early Hearing Detection + Intervention (EHDI)
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Recorded Webinar AudiologyOnline in partnership with ACI Alliance
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Family engagement has been critical in the development of Early Hearing Detection and Intervention (EHDI) that have made it possible for most children who are deaf or hard of hearing to develop similarly to their peers with typical hearing. However, a number of challenges and opportunities for improvement remain. This presentation summarizes the history of newborn hearing screening, describes the current status, and discusses some of the important challenges and emerging issues that could be addressed to further improve early identification of childhood hearing loss.
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State Champions Advocacy Network
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With more policy decisions and funding being pushed to the states, it is critical that the ACI Alliance nurture a robust grassroots network led by our State Champions and supported by ACI Alliance staff. The State Champions program is for ACI Alliance members who have an interest in contributing to our public policy efforts at the state and national levels. If you are interested in learning more, please contact Nichole Westin nwestin@acialliance.org.
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Members in the News | Dr. Daniel Lee
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Daniel Lee, MD, director, Pediatric Otology and Neurotology, is at the forefront of groundbreaking work to improve Auditory Brainstem Implant (ABI) technology, a device designed to help individuals with profound hearing loss who are unable to benefit from cochlear implants. Thanks to a generous gift of $1 million from the Ansin family, owners of 7News - WHDH Boston, Dr. Lee will develop new devices to aid those who aren't candidates for cochlear implants due to physical damage to their hearing systems.
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Overcoming Hearing Loss: From Drug Therapy to Cochlear Implant Surgery
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Edited by Adrien A. Eshraghi, MD, MSc, FACS
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This book starts by discussing the anatomy and physiology of the inner ear. Then it delves deeper into hearing loss, how to prevent it, and the genetics behind it. Management of related symptoms such as hyperacusis and tinnitus is discussed, as well as current medical treatments and new immunological approaches to treating hearing loss. Furthermore, the most up-to-date hearing devices such as digital hearing aids, implantable bone conduction devices, and cochlear implants are discussed at great length.
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Published in the American Association of Medical Assistants (AAMA) magazine, CMA Today
July/Aug Edition
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Discover the Benefits of Cochlear Implants
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Authored by Brian Justice
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This magazine reaches medical assistants working in primary care settings, for both pediatric and adult medicine. The article published in in the American Association of Medical Assistants (AAMA) magazine, CMA Today, discusses the importance of awareness, specifically myths vs facts regarding cochlear implants. ACI Alliance and others in the field were interviewed for this article.
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Published in Cochlear Implants International
July Edition
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Post-Operative Patient Perception of Decisional Regret in Cochlear Implant Recipients
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Authored by Sandra Prentiss, Hillary Snapp, Kevin J. Sykes, Molly Smeal, Alicia Restrepo & Hinrich Staecker
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Decision regret post-surgery has been linked to health outcomes for a number of elective procedures but is understudied in cochlear implantation satisfaction. Theunpredictability in outcomes may lead to unmet expectations by the recipient. This study is the first study to investigate the decision regret concept in cochlear implant recipients.
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Cleveland Clinic Podcast Discusses Advancements in CI and Expanded Patient Criteria
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In a recent episode of Cleveland Clinic’s Head and Neck Innovations podcast, Dr. Sarah Sydlowski and Marc Bassim, MD share information about Cleveland Clinic’s cochlear implant program, advances in cochlear implants, and how expanded patient criteria and surgical advances mean more patients can benefit.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org
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