Listening @ ACI Alliance | November 2024
Listening @ ACI Alliance

Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants. 

ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website. 

Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.

We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.

Dr. Nancy Young

CI2025 Boston April 30 - May 3 Apply for a Student Scholarship
We welcome full-time students, fellows and postdoctoral scholars who have a clinical or research interest in cochlear implants to this annual meeting. We are pleased to offer student opportunities for CI2025 Boston including, a student scholarship program, scientific poster presentation participation with a poster abstract submission, and eligibility for a student poster competition with a selected abstract. 
Curious about Boston in general as our host city? The Greater Boston Convention & Visitors Bureau is now Meet Boston. Find plenty of information at: Meet Boston. Meet Boston has helpful information for planning any kind of trip, including 10 Fun Things to Do on Your First Trip to Boston12 Hidden Gems to Visit in Boston, and nearly 20 available Tours & Activities!
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John Niparko Memorial Lecture Dr. Nancy Young

ACI Alliance is pleased to announce the selection of Dr. Nancy M. Young to deliver the annual Niparko Memorial Lecture at CI2025 Boston, on “Language Prediction to Improve Outcomes for Children with Cochlear Implants.” The Niparko lecture was established to recognize Dr. John K. Niparko’s enduring commitment to cochlear implant research and clinical care and honor his significant contributions to the field.

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Awareness

Ask the Audiologist | Blog

ACI Alliance recently launched a new blog, Ask the Audiologist. Drs. Melissa Hall and Cache Pitt answer questions from individuals with cochlear implants, parents of children with cochlear implants, and people with hearing loss wondering how the cochlear implant process works. Please share the blog and submit a question.

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The translation of Listening—Language—Literacy into Japanese was completed by Olivia Wee LSLS Cert AVT (Hear My Voice Auditory-Verbal Therapy) and Lelien.
Listeningè Languageè Literacy

The Listeningè Languageè Literacy initiative resulted in the development of an infographic designed to be widely used in supporting families of children who are deaf and hard of hearing and the professionals who serve them. This Japanese translation joins the English and Spanish versions of this important infographic that is being used around the world.

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Sarah Mowry, MD, Named Inaugural Cliff A. Megerian, MD, Chair

Sarah Mowry, MD, is the first physician to hold the Cliff A. Megerian, MD, Chair. Dr. Mowry is Vice Chair of Education and Residency Program Director for the Department of Otolaryngology-Head and Neck Surgery at UH Cleveland Medical Center. She holds the title of Professor of Otolaryngology at Case Western Reserve University School of Medicine. During her tenure, she has expanded and strengthened the renowned UH Otolaryngology training program, added CME symposiums, added fellowships, clinical research fellow infrastructure and evolved faculty development. Dr. Mowry was one of ACI Alliance's first State Champions.

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Listen CI Camp 2025

The 2025 Listen CI Camp Scholarship Application is currently available through November 15. Registration opens January 24, 2025, at 10:00am (MST).

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Event Details:

  • Where: Hybrid (virtual and in-person). Venue: Pullman Hotel, Upperhill, Nairobi, Kenya
  • Watch it live here
  • When: 7 October 2024, 1000-1130 CEST 
  • Languages: English with simultaneous captioning in English and French
Launch of the Ear and Hearing Care Status Report of the African Region

Register for the launch of the Ear and Hearing Care (EHC) Status Report at the African Summit on Hearing Impairment (ASHI) 2024 in Nairobi, Kenya.

The WHO Regional Office for Africa conducted a regional-level situation analysis using an abbreviated digital WHO EHC situational analysis tool in 2022-23. The status report provides a comprehensive view of the EHC situation in the region and includes recommended actions as per the World Report on Hearing.

The launch will:
• highlight the findings of the situation analysis conducted in the African region;
• emphasize the urgent need to strengthen health systems for Ear and Hearing Care (EHC) in the region; and
• raise awareness of the challenges facing EHC and possible solutions

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My Magic Ears | Authored By Bob Kennedy
My Magic Ears was inspired by the authors daughter Emeline. She lost her hearing at 11 months from a bout with meningitis. At 13 months, she was bilaterally implanted with cochlear implants.  My Magic Ears is for any child who has a cochlear implant, in the hopes that the book will help "normalize" their situation amongst peers, teachers and for anyone else in their world who has a curiosity about the world of cochlear implants.
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Rally Caps | Now Streaming on Peacock

Young Jordy heads to summer camp and develops a deep bond with Lucas, a deaf boy who recently had cochlear implant surgery; their friendship becomes the driving force as the pitcher-catcher duo leads their baseball team to the championship game.

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Parent Portal | Resources
For parents of children with hearing loss, we've gathered relevant resources in our Parent Portal for easy access. The Parent Portal has videos, graphics, blog posts, information on clinics, and more resources on how cochlear implants can help children with hearing loss. Please feel free to share this resource with your families, patients, and others.
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January 16, 2025 – January 18, 2025
8:00 AM-6:00 PM

Victoria University of Wellington Pipitea Campus
Wellington, New Zealand

14th Annual Coalition for Global Hearing Health Conference

The purpose of the Coalition for Global Hearing Health is to improve ear and hearing health and the lives of people who are deaf or hard of hearing, especially those in low- and middle- income communities.

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Advocacy

ACI Alliance Submits Formal Request for Medicare Coverage of Cochlear Implantation in Single-Sided Deafness and Asymmetric Hearing Loss

Last week ACI Alliance submitted a formal request to the Centers for Medicare and Medicaid Services (CMS) to expand the Medicare program’s coverage policy on cochlear implantation for individuals with post-linguistic sensorineural hearing loss. The organization submitted a formal Request for Reconsideration of Medicare coverage (a National Coverage Determination or NCD) based on the clinical presentation of the ear to be implanted. 

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FCC Approves Hearing Tech Compatible Order for All Handset Phones
The FCC approved an order requiring that all handset models (smartphones and handsets for landlines) must be compatible with hearing aids via Bluetooth and other technology. CI users will also benefit from this order.
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Take Action Alerts

Our Take Action Alert page is how you can share your voice on issues that impact the cochlear implant and hearing loss community. As critical issues arise on the Federal and state level, you can click on each banner to swiftly share your concerns to the key policy makers.

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Audiology Services in Diverse Communities: A Tool to Help Clinicians Working With Spanish-Speaking Patients and Families

As the population in the U.S. becomes more diverse, health care professionals have a responsibility to adapt their services to meet the needs of the diverse populations they serve. However, many providers lack access to the appropriate resources to provide high quality care to their Spanish-speaking patients. Audiology Services in Diverse Communities is a professional resource designed to decrease language barriers, improve patient-clinician interactions, and create more culturally competent hearing services.

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Research

Auditory Neuropathy Genetic Testing

A genetic diagnosis can empower families and individuals to make informed choices, foster connection with others in the community, and may provide valuable insights into medical management. Click below to see if you are eligible.

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Journal of Early Hearing Detection and Intervention | New Edition

All articles published in JEHDI can also be downloaded for free at www.jehdi.usu.edu. The Journal of Early Hearing Detection and Intervention is a scholarly, peer-reviewed, online publication dedicated to advancing Early Hearing Detection and Intervention (EHDI) by publishing articles that describe current research, evidence-based practice, and standards of care.

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Invited Commentary from JAMA Otolaryngology–Head & Neck Surgery

Authored by Karen A. Gordon, PhD, CCC-A, Reg CASLPO; Blake C. Papsin, MD, MSc; Sharon L. Cushing, MD, MSc

Long-term Language, Educational, and Quality of-Life Outcomes in Adolescents After Childhood Cochlear Implantation

This article is in response to Cochlear Implantation and Educational and Quality-of-Life Outcomes in Adolescence, by Ivette Cejas, PhD and colleagues. This type of clinical research is challenging because of the longtime course of follow-up and multiple measures required but is essential to document the influence that CIs have had on children throughout their development. There is reason to be optimistic about long-term outcome data still to come.

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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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Sponsors

P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org 
The mission of the American Cochlear Implant (ACI) Alliance is to advance access to the gift of hearing provided by cochlear implantation through research, advocacy and awareness.