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Listening @ ACI Alliance
Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants.
ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website.
Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.
We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.
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ACI Alliance Board of Directors
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ACI Alliance membership elected new board members during CI2023 Dallas: Cochlear Implants in Children and Adults in Dallas, TX. The Board of Directors exercises all corporate powers and manages the business and affairs of the Alliance. They establish program priorities central to its core mission of sponsoring research, increasing awareness and improving access to cochlear implants through advocacy while providing oversight of all activities carried out in support of its mission. Click below to see our new board members.
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ACI Alliance congratulates the student poster winners for CI2023 Dallas: Cochlear Implants in Children and Adults which was held in Dallas, TX June 7-10, 2023.
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Thank you to our CI2023 Poster Judges:
Melissa J. W. Hall, AuD/SLP
Debbie Hatch, AuD
Michael Hoa, MD
Jacob B. Hunter MD (Chair)
Sarah L. Lively, AuD
Theodore McRackan MD
Aaron Moberly MD
Sarah Mowry MD
Meredith Ouellette MS
Lisa Park AuD
Melissa Sweeney MS, LSLS Cert. AVT
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CI2023 Student Poster Winners
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Hannah Dunn AuD, Yale Hearing and Balance Center
“Vestibular Weakness in Cochlear Implant Recipients”. Hannah obtained a BA from the University of Iowa in 2019 and graduated from Purdue
University with a Doctorate of Audiology in May 2023. She just completed her fourth-year audiology externship at Yale Hearing and Balance.
Samir Gouin BS, McGill University
“Identifying Auditory Emotion Bio-Markers in Cochlear Implant Users with Machine
Learning”. Samir is finishing his second year of medical school at McGill University in Montreal,
Canada and previously received a BS in Neuroscience from McGill.
Darla McDonald M.Ed, BS, University of North Carolina at Chapel Hill School of
Medicine
“Effectiveness of modified map settings to reduce perceived tinnitus severity”. Darla is a rising third-year Doctor of Audiology student at the University of North
Carolina, Chapel Hill and works as a clinical research assistant in the UNC Cochlear
Implant Clinical Research Lab.
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CI2024 International | Save the Date | Abstracts Open in August
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The conference will foster dissemination of multi-disciplinary scientific information applicable to audiologists, physicians, speech pathologists, psychologists, scientists, engineers, educators, students, advocates, and others involved in cochlear implantation. It will provide attendees with opportunities to explore current global topics for CI patients across the lifespan. Plan your to submit your abstract in August 2023.
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World Hearing Forum to host 3rd Global Rehabilitation 2030 meeting and Launch the World Rehabilitation Alliance
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The World Hearing Forum will host the 3rd Global Rehabilitation 2030 meeting in July at World Health Organization headquarters in Geneva, Switzerland. The in-person event will be live-streamed for virtual attendees. The meeting is an opportunity to review progress of the Rehabilitation 2030 Call for Action and attendees will include senior officials and rehabilitation leaders from governments, rehabilitation service user groups, nongovernmental organizations and civil society, funding bodies, international professional associations, research institutions, and WHO along with other United Nations agencies and multilateral organizations. Details and registration information are available on the WHF website.
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Theo Vallas with Malala Yousafzai
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CI Recipient Theo Valles Participates in London Summit on Hearing Health Care Access
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CI Recipient Theo Valles recently reported back on his experience at an international meeting on hearing loss and hearing healthcare access.
“At the summit, I met inspiring role models across a range of fields including Malala Yousafzai, the world’s youngest Nobel Peace Prize, BBC News Anchor News Lewis Vaughan Jones, WHO members, and many more. I also worked together with four other Ambassadors from UK, France, India, and Brazil to create a message of encouragement for world leaders to prioritize hearing health and committed to a series of awareness raising activities in the United States. This has been an incredible and rewarding once-in-a-lifetime experience for me.”
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Tired of Being Tired: Managing Auditory Fatigue
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Auditory fatigue presents in many ways. It can be challenges with paying attention. For others, it may be the feeling of being tired or unable to listen any more after a listening effort. Some experience a strong desire to be in a quiet space or away from other people or sounds. Auditory fatigue can happen regardless of age and is experienced by infants, children, adolescents, and adults of all ages.
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Advocating for Cochlear Implant Access: ACI Alliance Toolkit for Action
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Our Advocacy Toolkit brings together our collective experience and knowledge in one place to help our members impact public policy on CI. Please contact us if you are interested in participating as a State Champion or a member of our Cochlear Implant Consumer Advocacy Network (CI CAN), or for support on an issue in your state.
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Senator Blumenthal (D-CT) intends to introduce the Stop CMV Act of 2023
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Sen. Blumenthal intends to introduce the Stop CMV Act of 2023. Once introduced and passed, this legislation would incentivize hospitals and other health care providers at the national level to screen babies for CMV within the first 21 days after birth. The Senator has long been interested in pediatric hearing issues. ACI Alliance is working with other organizations to ensure support for this critical issue.
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Listeningè Language è Literacy For All Deaf and Hard of Hearing Children: A Collaborative Initiative
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A task force of individuals who support families of children who are deaf and hard of hearing recently completed a 5-month collaborative process to develop research-based messages on the benefits of listening for language development and literacy. The Listening è Language è Literacy initiative resulted in the development of an infographic designed to be widely used in supporting families of children who are deaf and hard of hearing and the professionals who serve them.
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Our new Take Action Alert page is how you can share your voice on issues that impact the cochlear implant and hearing loss community. As critical issues arise on the Federal and state level, you can click on each banner to swiftly share your concerns to the key policy makers.
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Connecticut Becomes Second State with Universal Screening for CMV
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Beginning in 2025, Connecticut will become the second state to screen all newborns for CMV as a part of the newborn screening. Minnesota began screening in February 2023 and already a growing number of infants are being diagnosed with CMV who may not have been in other states without screening.
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Ivette Cejas, PhD; David H. Barker, PhD; Esteban Petruzzello, PhD
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CI and Educational and Quality-of-Life Outcomes in Adolescence
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A new study authored by Ivette Cejas PhD and colleagues was published June 29 online in JAMA Otolaryngology. The research, supported by ACI Alliance with a grant from Oberkotter Foundation, demonstrates the impacts that cochlear implants have on children as they age into adolescence. A pilot grant awarded by AHRF and ACI Alliance set the stage for the work.
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Single-Sided Deafness (SSD) Clinical Trial
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Recruiting begins for a new single-sided deafness (SSD) clinical trial being conducted by UNC Investigators Drs Lisa Park and Kevin Brown. This study will investigate the impact of early cochlear implantation on hearing, learning, communication, and behaviors in children with SSD. Children who qualify and are under the age of three will receive a cochlear implant at no cost. They will be followed by UNC's study team for hearing testing and device programming until they reach age five. At that time, they will be tested on measures of language, hearing, learning, and behavior. The results will be compared to other five-year-old children who have typical hearing and to five-year-olds with SSD who have not received a cochlear implant.
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Daniel M. Zeitler MD, FACS; Sandra M. Prentiss PhD; Sarah A. Sydlowski AuD, PhD, MBA; Camille C. Dunn PhD, CCC-A
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American Cochlear Implant Alliance Task Force: Recommendations for Determining Cochlear Implant Candidacy in Adults
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This research summarizes the current evidence for determining appropriate referrals for adults with bilateral hearing loss for CI evaluation. It also provides a standardized testing protocol for CI candidates using a team-based approach that prioritizes individualized patient care. The document was developed by the Adult Cochlear Implantation Candidacy Task Force of the American Cochlear Implant Alliance using review of the existing literature and clinical consensus. This research is currently paywall restricted. Additional materials supporting this article will be forthcoming. The abstract is available at the link below. Stay tuned for full access to the paper.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org
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If you would like to unsubscribe: @@unsubscribe_url@@
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