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Listening @ ACI Alliance
Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants.
ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website.
Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.
We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.
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That's a Wrap on CI2025 Boston!
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Thank you to all who participated in CI2025 Boston Conference! We had a busy and productive week that kicked off with exciting symposia from Advanced Bionics, Cochlear, and MED-EL.
At the Opening Session, ACI Alliance Executive Director Donna Sorkin highlighted the conference program and participants from around the globe with 36 countries represented. We celebrated Dr. Bruce Gantz’s Lifetime Achievement Award and heard Dr. Nancy Young deliver an inspiring Niparko Memorial Lecture on “Language Prediction to Improve Outcomes for Children with Cochlear Implants". Thursday also had an interactive poster highlight session including a student poster competition and our opening reception in the exhibit hall – thank you to all our exhibitors. Congratulations to our Student Poster Competition Winners. CI2025 Student Poster Competition | Results Are In!! - American Cochlear Implant Alliance
On Friday, Dr. Paul Van de Heyning delivered an important keynote presentation on “Single-Sided Deafness and Frequency Allocation in Cochlear Implantation,” and we discussed ACI Alliance organizational priorities including advocacy and the election of new board members. Thank you to Dr. Andrea Warner-Czyz for your service as Board Chair, and congratulations to Dr. Daniel Zeitler as the newly elected Board Chair. Also, a thank you to Kevin Brown MD, PhD and Amy Lynn Birath AuD for their service to the board, as we welcome Douglas Sladen PhD, Ivette Cejas, PhD, and Jacob B. Hunter MD.
Panels throughout the week included content on advocacy related to proposed Federal cuts in programs that impact CI access, (Re)Habilitation Connect for pediatric and adult patients, a Stump the Experts panel, the latest on surgical techniques and outcomes, disparities in CI access, quality of life and outcomes for CI recipients, new sessions on emerging technologies, single-sided deafness candidacy and outcomes, a global hearing healthcare panel, and more. CI2025 also hosted four successful and growing Special Interest Group lunches for students, members with hearing loss, educators, and aural rehab. We closed it out with a field trip to Massachusetts Eye & Ear research lab.
Don't forget to submit for CEUs. Be on the lookout for selected abstracts to be available online in the next few weeks.
Visit our Facebook page to see the full photo album of all CI2025 Boston activities!
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Lexi Finigan, the voice of Cece in El Deafo, launches Cochlear Implant Connections For Teens
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Cochlear Implant Connections For Teens, will provide a valuable platform for Lexi to host a series of webinars for teens to connect, share experiences, and learn from each other and from professionals about their life with cochlear implants. Topics might include talking to friends about your hearing loss and CIs, advocating for yourself, navigating transitions, and becoming comfortable with the changes that all teenagers—with or without hearing loss—must negotiate.
**Look for more information soon on dates and how to sign up for Lexi’s live webinars.**
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National Speech Language Hearing Month | MAY
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Each May, National Speech Language Hearing Month provides an opportunity to raise awareness about communication disorders.
ACI Alliance resources are designed to help patients with hearing loss and parents of children with hearing loss who either have, or are considering, a cochlear implant. Please feel free to share these resources with your own networks, patients, colleagues or friends. Resources to Share - American Cochlear Implant Alliance (acialliance.org)
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Familiar Sounds Audiogram Worksheet
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For every professional who has ever wished there were an easier way to explain, the Familiar Sounds Audiogram Worksheet is the perfect tool to add to your practice! It’s a simple, interactive way to explain what a child can hear. Check out this great tool provided from Hearing First.
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Late Onset Hearing Loss | Awareness Week May 4-10
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Take Notice - Take Action
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Late Onset Hearing Loss Awareness Week was established in May 2021 to shine a spotlight on a population of young children who go unnoticed and undiagnosed because they passed the newborn hearing screen but developed hearing loss later on. Sometimes these children are not discovered for months or years following the onset of their hearing loss.
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Webinar on May 12th: Meaningful Outcome Measures in Adult Hearing Health Care
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A committee of the National Academies of Sciences, Engineering, and Medicine was convened to examine the state of the science in outcomes research for interventions in adult hearing health care (excluding surgically placed prosthetic devices), with an emphasis on measures that are meaningful to the individual and the clinician. The report is expected to be released May 7 and a virtual release event to follow on May 12. Members of the report authoring committee will discuss the report’s key messages and recommendations.
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South Florida teen born deaf excels in school thanks to determination, modern science
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Pediatric psychologist Dr. Ivette Cejas, with the University of Miami, said detecting his hearing loss early helped give him a better life. A recent study by Cejas, published in the Journal of the American Medical Association, found that children who get cochlear implants early have better academic performance, as well as better reading, writing and language skills, compared to children at or above the typical age and gender expectations.
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Newborn Screening in the United States: A Vision for Sustaining and Advancing Excellence
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NASEM Health and Medicine recorded a virtual public release webinar of a new report examining the current landscape of newborn screening (NBS) systems, processes, and research in the United States and navigating the path ahead. Members of the authoring committee presented the report’s findings and recommendations and answered audience questions during the webinar. You can view the recorded webinar below.
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Date: 21 May
Time: 12 pm CEST
Location: Virtual / Zoom
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WHO-ITU Global standard for safe listening in video gameplay and esports!
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Video gameplay and esports have become a part of life for over 3 billion people worldwide, making hearing health more important than ever. This new standard focuses on adding safe listening tools to games and devices while keeping the fun of video gameplay the same.
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Author by: Asitha Jayawardena MD, MPH
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Breaking the Sacred Promise
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This article was published on April 5, 2025, at NEJM.org.
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The physician's promise to his patient and family is tested with each rejection from the insurer for the infant's cochlear implant surgery, a procedure vital for overcoming profound sensorineural hearing loss.
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Support EHDI and Medicaid
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Over the 20+ years that EHDI has been existence, this bi-partisan effort to identify children with hearing loss at birth and provide them with early access to technology and intervention services has been successful in screening 98% of newborns within one month of life. This important accomplishment is now endangered by cuts being made in this critical program. An article this week in Time highlighted the issues in a very public way.
https://time.com/7278169/baby-screenings-newborn-changing-trump-administration/
ACI Alliance has been meeting with key Congressional offices to discuss the impact of cuts on Medicaid and EHDI. You can support our efforts to save these programs by participating in our Action Alerts. We have had a tremendous result of 5,000 alerts send thus far, please let us reach our goal of 6,500 messages.
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Action Alert | Missouri Medicaid
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Passage of the Missouri bill providing CI coverage under Medicaid is so close. If you live or work in MO, please use this action alert to spread the word!
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Dr. Eshraghi had a book signing at CI2025 Boston, pictured here with ACI Alliance Executive Director Donna Sorkin
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Overcoming Hearing Loss: From Drug Therapy to Cochlear Implant Surgery
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Edited by Adrien A. Eshraghi, MD, MSc, FACS
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This book starts by discussing the anatomy and physiology of the inner ear. Then it delves deeper into hearing loss, how to prevent it, and the genetics behind it. Management of related symptoms such as hyperacusis and tinnitus is discussed, as well as current medical treatments and new immunological approaches to treating hearing loss. Furthermore, the most up-to-date hearing devices such as digital hearing aids, implantable bone conduction devices, and cochlear implants are discussed at great length.
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Authored by: Heather J Smith, Samira Takkoush, Taylor J Mendenhall, Makenzie L Bramwell, Jason L Steele, Mana Espahbodi, Neil S Patel, Richard K Gurgel
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Hearing Benefits of Cochlear Implantation in Older Adults With Asymmetric Hearing Loss
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In this group of older adults with SSD or AHL, CI demonstrated significant benefits in hearing thresholds and speech recognition in the implanted ear. Moreover, the average of 9.3 hours of daily use suggests that patients' CI is tolerated and beneficial in this population.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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Abstracts open in July for CI2026 Chicago May 6-9, 2026, start planning your submission. We look forward to seeing you in Chicago!
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P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org
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