Listening @ ACI Alliance | April 2023
Listening @ ACI Alliance

Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants. 

ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website. 

Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.

We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.

Early Registration Rates Extended to April 21
Reminder! Early Bird rates will be available through April 21, 2023. Don't miss these discounts.   
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(Re)Habilitation Connect Forum

The (Re)Habilitation Connect Forum is happening at CI2023 on Friday, June 9th from 1:30-5:15 PM. The forum is a featured event at CI2023 Dallas and will emphasize clinically-applicable, research-based information.

*Part I - Cochlear Implant Intervention and Outcomes for Children with Early Developmental Impairments 
*Part II - Post-implantation Therapy Benefits Adults, Too 
*(Re)Habilitation Connect Forum Attendees: Continue the Conversation Reception sponsored by Hearing First.

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View Courses
Adult Assessments in Hearing Healthcare

View the recordings of this 5-part webinar series by AudiologyOnline and ACI Alliance. This series is intended to stimulate collaborative approaches for hearing health professionals, regardless of what hearing technologies they typically provide. CEUs are available for those who are part of the AudiologyOnline program but anyone can attend for free. 

Adult Assessments in Hearing Healthcare: Working Across the Continuum, in partnership with American Cochlear Implant Alliance
Presented by Camille Dunn, PhD, Susan Good, AuD, MBA

The Roles of Audiologists and Dispensers Working with Hearing Aid Users in Cochlear Implant Candidacy, in partnership with American Cochlear Implant Alliance

Presented by Alejandra Ullauri, AuD, MPH


Utility of the New CI Quality of Life Instruments to Personalize and Improve CI Care, in partnership with American Cochlear Implant Alliance

Presented by Ted McRackan, MD, MSCR


Adult Perceptions of Hearing Status and Options: Professionals Facilitating a Life-long Hearing Journey, in partnership with American Cochlear Implant Alliance

Presented by Donna L. Sorkin, MA


Optimizing Outcomes in Hearing Technology: Hearing Aids and Implantable Devices, in partnership with American Cochlear Implant Alliance

Presented by Rene Gifford, PhD


Awareness

Rehabilitation for Adults Post Cochlear Implantation

Share information with your patients, families, and friends about upcoming April's Tuesday Talk webinar on "Rehabilitation for Adults Post Cochlear Implantation?" This is a two part series that will begin on April 18 & 25.

Tuesday Talks are a free, captioned webinar series hosted monthly at 12 Noon ET. All sessions are free to attend and captioned. 

Register Here
How to Help your Patients who Struggle to Hear Better (and Love Your Services)
We are excited to partner with the International Hearing Society for a webinar on April 13th to support the work of hearing instrument specialists who have patients who struggle to hear with hearing aids know how and when to begin the discussion of cochlear implants.
Register Here

empowEar Audiology Podcast

Communication is connecting. Join Dr. Carrie Spangler, an ACI Alliance leader and a passionate audiologist with a personal hearing journey, as she interviews guests who are navigating their own professional or personal journey in the hearing loss world. If you want to be empowEARed or just want to hear some great hearing and listening advice, this podcast is for you! Listen to this podcast where she interviews Donna Sorkin to speak about her hearing journey.
Listen Here
Can She HEAR This Cat's Meow?
This new hybrid book (for children 9 and up and the adults in their lives) is authored and illustrated by a grandmother (who is a CI recipient) and her granddaughter.  It provides a sensitive and engaging set of perspectives on how they learned to accommodate each other with details on technology and other approaches for enhancing communication. Julie Olson, the grandmother half of the team is an ACI Alliance member and long-time advocate. The fun illustrations add to this appealing book.
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Advocacy

ACI Alliance Joins Others In Support of Airline Captioning Bills
ACI Alliance has joined other organizations in supporting  HR 1267, The Air Carrier Access Amendments Act and its Senate companion bill S. 545. The ACA Amendments Act will address continue shortfalls in air transportation such as damaged assistive devices and wheelchairs, delayed assistance, unclear communications, and lack of onboard accommodations. If passed, the bills would positively impact cochlear implant users by requiring airlines and airports to provide captioning for all inflight entertainment and announcements as well as for airport communications. ACI Alliance has also worked with Hill Staff to encourage inclusion of similar language in the upcoming FAA reauthorization. 
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Arizona PBS Covers Efforts to Expand Medicaid to Cover Adults
Due to the efforts of Arizona State Champ Dr. Shawn Stevens, the Arizona Legislature is considering expanding Arizona Medicaid to cover cochlear implants in adults. The local PBS station recently interviewed ACI Alliance Executive Director Donna Sorkin and others on the role CIs have played in their lives and the importance of this bill.
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Research

Authored by: Ryan J. Carlson PhD; Tom Walsh PhD; Jessica B. Mandell MS
Association of Genetic Diagnoses for Childhood-Onset Hearing Loss With Cochlear Implant Outcomes
How does the underlying genetic heterogeneity of pediatric sensorineural hearing loss (SNHL) contribute to its variable presentation and the success of cochlear implants? The study results suggest that genetic testing is a valuable prognostic tool for managing pediatric hearing loss and a predictor for cochlear implant outcomes.
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Authored by: Amit Walia, James Bao, Noel Dwyer, Susan Rathgeb, Stephanie Chen, Matthew A Shew, Nedim Durakovic, Jacques A Herzog, Craig A Buchman, Cameron C Wick
Predictors of Short-Term Changes in Quality of Life after Cochlear Implantation
This study aimed to measure the effect of cochlear implantation on health-related quality of life (HR-QOL) using the Cochlear Implant Quality of Life (CIQOL) questionnaire to determine audiologic, demographic, and non-CI/hearing-related QOL factors influencing the CIQOL.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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Sponsors

P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org 
The mission of the American Cochlear Implant (ACI) Alliance is to advance access to the gift of hearing provided by cochlear implantation through research, advocacy and awareness.