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Listening @ ACI Alliance
Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants.
ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website.
Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.
We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.
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CI2024 INTERNATIONAL PROGRAM WILL BE PUBLISHED LATER THIS WEEK
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CI2024 Vancouver Student Scholarship Recipients | Schedule at a Glance
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Congratulations to all the student selected for the CI2024 Scholarship. See you in Vancouver!
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The (Re)Habilitation Connect Forum will be held Friday July 12 at CI2024 International. This is a full afternoon of presentations and discussion for attendees from across the care continuum regarding CI aftercare. The forum includes an opportunity for attendees to “Continue the Conversation” with refreshments generously sponsored by Hearing First.
1:30-3:10
(Re)Habilitation Connect Forum: Part 1 - Pediatrics
Exploring Variability in CI Outcomes in Children
3:10-3:25
Coffee Break with Exhibitors
3:25-4:45
(Re)Habilitation Connect Forum: Part 2 - Adults
Developing and including rehabilitation for adults in CI programs.
4:45-5:30
Continue the Conversation
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(Re)Habilitation Connect Forum | Friday, July 12
1:30 PM - 5:30 PM
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Participation in the ACI Alliance Medicare Expansion Study Changed My Life!
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I was a nurse and feel disappointed when some people won’t even think about a CI for various reasons. I want to share my story because my CI is a gift to me. I was thrilled to be a part of the Medicare expansion study and help others have access to this extraordinary technology.
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Speaker One (April 17, 12 Noon)
Dana Suskind MD
Professor of Surgery and Pediatrics
Co-Director TMW Center for Early Learning + Public Health
University of Chicago
Title of Presentation
Leveraging New Technology to Help Parents Foster Rich Language Environments
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The Power of Parents in Fostering Language in Deaf and Hard of Children
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This two-part online series will emphasize the key role of parents in fostering language in children who are deaf and hearing. This course is presented by AudiologyOnline in partnership with ACI Alliance.
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Speaker Two (April 24, 12 Noon)
Karl R. White PhD
Director, National Center for Hearing Assessment and Management
Emma Eccles Jones Endowed Chair in Early Childhood Education
Professor of Psychology
Utah State University
Title of Presentation
What’s Past is Prologue: Engaging Families in Continuing to Improve EHDI Programs
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Rally Caps is an official selection of the ReelAbilities Film Festival in New York. The screening will be on Sunday, April 7th at 2:30 pm at the Marlene Meyerson JCC Manhattan, 334 Amsterdam Ave, New York.
Based on true events, it focuses on a young boy named Jordy who overcomes a serious injury he experiences during a Little League baseball tryout. Jordy goes to summer camp and he is inspired to come back to the mound when he forms a friendship with a deaf boy named Lucas. Lucas plays catcher and is facing his own crises of just having Cochlear Implant surgery. Together, they form a special bond as friends and pitcher/catcher duo, and lead their team in the camp championship game.
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2024 Early Hearing Detection & Intervention Conference
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ACI Alliance staff and members will be presenting at the upcoming EHDI Conference in Denver. Staff members will present on Language Nutrition (Donna Sorkin) and provide updates on EHDI websites (Nichole Westin). Uma Soman (member/educator) will present on Listening—Language—Literacy.
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National CMV Foundation | Webinar Thursday March 21
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This a CMV family support group hosted by volunteers. Join them on Thursday March 21 at 8 PM EST for the Care to Talk Series. Pre-registration is required. Use the QR code to register.
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Listening & Spoken Language Camp
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Registration for the 2024 Listening and Spoken Language Camp is open! Campers love participating in all the typical outdoor camp activities so much that they often do not notice the self-advocacy and leadership skills that have been embedded into each exercise. Deaf and hard of hearing mentors are also integrated into camp so that everyone has a role model for success.
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ACI Alliance staff (Donna Sorkin) and member (Casey Stach AuD) from the University of Michigan CI Program wil present "Do Our Societal and Educational Systems Value Listening for Children Who Are Deaf and Hard of Hearing?"
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Hearts for Hearing CEO and co-founder, Joanna T. Smith, is stepping down from her role after a 47-year career serving individuals with communication needs and helping babies and children born deaf learn to listen and talk. Smith, a Speech-Language Pathologist, co-founded Hearts for Hearing in 2003 and has served as the CEO for the organization since 2011. The organization is one of the leading hearing health care centers for children and adults in the United States.
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Matthew L. Bush MD PhD, MBA was recently promoted to Professor and Chair Department of Otolaryngology; University of Kentucky Medical Center. Dr. Bush also serves on the Board of Directors for ACI Alliance.
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Dr. Micheal Hoa is starting a new position as Professor at MedStar Georgetown University Hospital. Dr. Hoa serves as the medical director of the MedStar Georgetown University Hospital Cochlear Implant Program which provides comprehensive cochlear implant services to both pediatric and adult populations. He also serves as the Chair of the Research Committee for ACI Alliance.
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ACI Alliance Supports ACLU- Delaware Complaint on services to Delaware’s Deaf and Hard of Hearing Students
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ACI Alliance wrote to The Honorable Catherine E. Lhamon, Assistant Secretary for Civil Rights to emphasize Delaware’s lack of compliance with federal disability law, and the serious detrimental impact the state’s inaction has on students with hearing loss and their families.
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Missouri Legislature Takes up Medicaid Expansion
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Thanks to the efforts of our State Champion, Kate Sinks AuD, and others, legislation for Medicaid to cover CIs in adults is advancing in both the House and Senate.
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Bill on cCMV Screening Advances in Washington State
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Legislation that requires the state board of health to consider whether or not to add cCMV to the mandatory screening panel is expected to become law. ACI Alliance will continue to monitor the panel on screening once it is established.
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Long-Term Educational and Quality of Life Outcomes of Cochlear Implants for Early Implanted Children
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Findings from this study indicate that children with severe to profound hearing loss who use cochlear implants have better educational outcomes and quality of life, regardless of age at implantation, than non-implanted children. Specifically, children in the CDaCI cohort had better educational outcomes in reading, writing (Woodcock Johnson) and quality of life compared to non-implanted children with severe to profound hearing loss. Children implanted prior to 18 months of age had the highest levels of oral language and academic achievement.
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Authored by Brittney Sprouse AuD
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Advancing Clinical Decision Making Through Trauma-Informed Care in Pediatric Hearing Health Care
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To improve the quality of care for children with hearing loss who have experienced trauma, their adverse experiences must be considered with trauma-informed techniques incorporated into the hearing health care model of care.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
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P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org
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