Listening @ ACI Alliance
Listening @ ACI Alliance

Listening is a vehicle for us to share information on cochlear implants and hearing loss with hearing healthcare providers, adult CI recipients (and those exploring CI), parents and family members interested in CI, educators who work with deaf and hard of hearing children, and anyone wanting to learn more about cochlear implants. 

ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for people of all ages. There is a wealth of information on our website. 

Our work at ACI Alliance follows our mission encompassing research, advocacy, and awareness. Accordingly, Listening covers all three.

We encourage you to share sign-up details for this free e-newsletter with patients, family members, colleagues or anyone who may be interested.

CI2024 Vancouver Student Scholarships
ACI Alliance is pleased to offer a limited number of scholarships for students, residents, and fellows in hearing sciences who wish to pursue clinical practice and/or research in cochlear implantation. The scholarships awarded will provide the conference registration, a $120 stipend, and a complimentary membership to ACI Alliance until the date of the students’ program completion.

The deadline to submit a CI2024 Student Scholarship Application is January 12, 2024.
Apply Here

Awareness

American Cochlear Implant Alliance Task Force: Recommendations for Determining Cochlear Implant Candidacy in Adults
Authored by Daniel M. Zeitler MD, FACS, Sandra M. Prentiss PhD, Sarah A. Sydlowski AuD, PhD, MBA, Camille C. Dunn PhD, CCC-A
Due to a variety of factors, only a small percentage of adults who could benefit from a cochlear implant (CI) receive one. Indications for cochlear implantation have expanded but there is variability in how providers are assessing patients and whether they are using up-to-date indications. This paper reviews the current evidence for determining appropriate CI referrals for adult patients with bilateral hearing loss, emphasizing the importance of evaluating each ear individually, utilizing and using a “revised 60/60 rule.” 
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This is Naama's 50th blog entry on Cochlear Implant Rehabilitation for Adults. Read more of here blogs here: https://www.acialliance.org/page/AdultRehab
I've completed my clinician-guided auditory rehabilitation. How can I maintain what I've achieved and continue progressing?
After AR concludes, who can you turn to for support? What can you do to maintain your progress and continue to progress? Joining groups and being familiar with resources and organizations of people with hearing loss, specifically CI recipients, can provide valuable information and support. Increasingly people are benefitting from online groups such as Cochlear Implant Experiences, which is moderated by knowledgeable individuals and is a reliable source of information.  
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Veterans with Hearing Loss Resources and Webinar
Watch Webinar
Veterans Day is November 11th and ACI Alliance has ample resources to help veterans with hearing loss navigate their options, including details on coverage for cochlear implants through the VA. Please feel free to share these resources and veteran stories with family members, friends or patients.
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Listening to Podcasts
Podcasts can be a great resource for information on cochlear implants and to hear other people's hearing loss stories. Visit our new podcast page for more!
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Hearing Loss: What You Need To Know About Cochlear Implants
Jeffrey Snyder of the Broadcast Retirement Network recently interviewed ACI Alliance Executive Director Donna Sorkin on “What You Need To Know About Cochlear Implants.”
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Disability & Health Webinars in November
The American Association on Health and Disability launched the 2023-2024 Disability & Health Webinar Series! Join them on Thursday, November 2nd at 11:00am PT/ 2:00pm ET for a conversation with disability community members and advocates as they share a vision of inclusive health research. Learn more about the All of Us Research Program and how inclusive research might support better health for all. CART and ASL will be provided.
Register Here
Researcher Workbench Demo
Disability health researchers are invited to a demonstration webinar on the All of Us Research Hub and Workbench with an emphasis on disability on Wednesday, November 8th at 12:00pm PT/ 3:00pm ET.
Register Here
Listen CI Camp
Families Sharing Success

Scholarship applications for summer 2024 Listen CI Camp are due November 19th. Registration opens January 26, 2024.

This camp promotes CI families sharing connection, friendship, and education in a fun filled 4-day weekends hosted at the YMCA of the Rockies - Estes Park, CO.

June 27-30, 2024 for CI Recipients Entering 5th Grade - 2024 High School Graduates along with their parents & siblings.

July 25-28, 2024 for CI Recipients Age 3 - Entering 4th Grade along with their parents & siblings.

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Music as Medicine: The Science and Clinical Practice
The workshop “Music as Medicine: The Science and Clinical Practice,” taking place December 14–15, 2023, aims to highlight accomplishments from the last 6 years in advancing scientific research on music and health, develop a blueprint for the next phase of research, and further build the research community. 
Register Here
6 Principles for Supporting Children's Language Learning

Thanks to Roberta M. Golinkoff, University of Delaware and Kathy Hirsh-Pasek, Temple University for these practical principles.

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Click below to read more on Listening, Language, and Literacy.
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Advocacy

Proposed Michigan House Bill To Add CMV Screening For Newborns

The Michigan House recently introduced a bill that adds CMV screening to the Newborn panel and calls for distribution of information on the impact CMV can have on infants. Michigan State Champs, along with many others, have been instrumental in ensuring a bill was introduced and hope to see a similar bill in the Senate.

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Ask Congress to Support the IDEA Full Funding Act (H.R. 4519/S. 2217)

ACI Alliance supports the IDEA Full Funding Act and asks members to contact their Members of Congress via our Action Alert. The IDEA Full Funding Act would require regular, mandatory increases in IDEA spending to finally meet our obligation to America’s children. 

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Research

There are two upcoming funding opportunities related to the TALK Initiative – (1) Leveraging Extant Data to Understand Developmental Trajectories of Late Talking Children and (2) Information and Practice Needs Relevant to Late Talking Children. Funding amounts are TBD and the first estimated applications due date for both is February 1, 2024.

Research Grants Available through New NIH TALK Initiative  
The National Institutes of Health (NIH) recently launched the Tackling Acquisition of Language in Kids (TALK) research initiative to support late talking children. The purpose of the TALK initiative is to advance understanding of why children with various conditions or risk factors are late to talk; define developmental trajectories that lead to better outcomes; and evaluate the effectiveness of clinical approaches to improve language outcomes. The ultimate goal of the initiative is to provide parents, caregivers, educators, and health care professionals with the information they need to help late talking children grow and thrive in school and life.
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Matthew L Carlson, Christine M Lohse, John P Marinelli, Sarah A Sydlowski
Perceptions Surrounding Cochlear Implants Among At-Risk and Qualifying Older Adults in the United States
Limited evidence to date has examined public perceptions of cochlear implants among adult hearing aid users with moderate to profound hearing loss. The current work was conceived with the chief objective of characterizing the perceptions surrounding cochlear implants among the prospective candidate pool.
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Like what you’ve seen? There is no obligation to join to continue receiving Listening but if you wish to be more involved in ACI Alliance, explore the opportunities for membership.
Join Us

Sponsors

P.O. Box 103 | McLean, VA 22101-0103 | Phone: 703.534.6146
Website: https://www.acialliance.org 
The mission of the American Cochlear Implant (ACI) Alliance is to advance access to the gift of hearing provided by cochlear implantation through research, advocacy and awareness.